The following resources are all places that we found helpful throughout the different stages of our journey, but are by no means a complete list.
Websites
- Brain Tumour Charity
- The Brain Tumour Charity’s Children and Families Team offer support to children, young people and families affected by a brain tumour diagnosis. You can find out more here or contact the team by calling 0808 800 004, emailing childrenandfamilies@thebraintumourcharity.org or using the live chat function on the website (Monday-Friday 9am-5pm)
- Young Lives v Cancer
- CCLG – My Child Cannot Be Cured
- 40 hours at home – by Emily Tammam – Emily’s Substack
- MollyOllys
Books
- Follow the child – Sacha Langton-Gilks
- With the end in mind – Kathyrn Mannix
- Surviving the tusnami of grief – Katrina Taee and Wendelien Mcnicoll
Childrens Books
- The coat I wear – Mel Maxwell
- Sad book – Michael Rosen
- The night crossing – Pia Jones and Sarah Pimenta
- Olly the brave series – Diane Maybey
My Dying Child 